Needless to say that her grades suffered, but I have always worked with her a lot as she misses information during the day and you never know where. I never felt like we needed one until last year, third grade was rough but not academically she got bullied and the school did not take it seriously taking her anxiety level so high that the 6 to 12 absences that she usually has for 2 to 8 seconds each doubled. I am going to have the first appointment next week, my daughter is 9 and she's had them since Kinder. I'm not sure if all my rambling helped in any way but feel free to email me anytime! Best of luck to you and your son!! Tlo I didn't specify what her symptoms were caused by but better yet listed ALL her symptoms and what medication she was taking. I just filled out over 9 pages of paperwork including her 504 paperwork. Sounds like you may need to change doctors.he should provide you with any information you need for the school. Really hoping we find the right meds soon. She complains of a tummy ache about once a week and takes Zonegran 100mg 2xday. We had two blood tests last week for elevated liver enzymes and histamine but they both came back negative. She also does not want to eat and all of this due to the medicine. She has an awful itching (without rash) right now on her scalp and back. She is very aware of her seizures and very self conscious about them. Right now we are struggling with her withdrawling from activities and not wanting to even go to school. I figure any additional assistance would be better than none. I haven't had my evaluation with the administrators yet but it sounds like she will receive extra help in classroom, receive extra time on tests, etc. There is not a negative cogitation to them and I think it will be the best thing we can do for our children in this situation. Actually filled it out tonight before I hopped online! I called several of my friends who are teachers today and it sounds like it's a very smart idea. Phew those are a mouthful!Īnyhow, funny I found your post because I just received a Section 504 for my daughter as well from her teacher on Friday. We started on these and they are in order: Zarontin, (generic Ethosuxamide), Lamictal, Depakote, Clonezapam (rescue med) then Zonisamide and last week we just switched to the brand name of it Zonegran. My daughter was diagnosed with Absence Epilepsy a year ago this month (she is 6 now) and has blown thru a ton of medications. I've been to 3 and now that I have found this last one, I wouldn't change for the world. I don't know where you live, but I know that having a good neuro is a HUGE support. I used to take a few minutes to myself if needed, I took tests separately if needed. In my senior year of school my Mom and I went in a couple days early and spoke personally to all the teachers, told them what to expect and how I might act. My best advice to you would be up front with teachers and counselors. I am a very high functioning epileptic, so everyone always thought I just had a hard time focusing. I wasn't diagnosed until I was in High School so things were opposite for me than they are your son. Hi there my name is Katie and I've got absence epilepsy. From his point of view, I was 20 feet across the room, then when he came out of it, I was just 6 inches away - I'll never forget the look on his face that day!Īny other tidbits of information you can share that would help us make life easier for him while we try to find the right medication? I've learned a few things on my own - behavioral things, like not approaching him when he's having a seizure. Are the "foggy" days due to the medicine, disruptions in his sleep, or just from multiple seizures? He's having focus issues, poor memory recall, generalized "foggy" days, and of course, missed information and blank holes in tests due to seizures.ĭue to a lack of information from the neurologist, I have nothing to really share with the school regarding how the epilepsy affects his schoolwork and why. His teacher is asking for a 504 plan to make accommodations for him, and I need some help in determining what types of accommodations we should be asking for.ĭoes anyone have any advice as to what accommodations should be made for a child with Absence Epilepsy? In the meantime, my son - who has always been a great student (excellent grades, good behavior, participates in the gifted program) - is now starting to struggle in school. We've had a terrible time getting any help from our neurologist - we have an appointment with a new doctor next week and are hoping for a better response. My 8 year old son was diagnosed with Absence Epilepsy two months ago, and while we've seen a reduction in the number of epsiodes with Zarontin (ethouximide), the seizures continue.
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